Posts Tagged ‘friends’

Random Acts of Cancer Kindness

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During my first cancer treatment I was scared and in pain. I wanted hope and an escape, reassurance and strength. It came in the mail. I received a hand written letter full of empathy and understanding from a guy named Brian. He had suffered from Crohn’s disease and knew what it was like to feel...
October 6th, 2009 | Everything Changes | Read More

Meshing illness and intimacy?

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This post is much longer than usual but is so raw, eloquent, and well worth taking the time to read.  Leslie Rott is a 23 year-old lupus patient and grad student at University of Michigan.  She’s the creator of Getting Closer To Myself blog. Take it away Leslie: I have been struggling for a...
August 14th, 2009 | Everything Changes | Read More

Ever get unwanted health advice from friends?

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Here’s a great question I got from a reader living with lupus: Dear Kairol, A number of people are giving me well meaning but downright useless and unsolicited advice about my illness and how I should handle it – diet suggestions, names of new doctors, and how to manage my illness in the workplace.   ...
July 31st, 2009 | Everything Changes | Read More

When ‘How Are Your Doing?’ is Not a Simple Question

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Last night was Shannon’s office party.  (Fantastic blue cheese, good shrimp.)  One of his co-workers gave me a seriously long hug, clutched my arm, and looked deeply into my eyes. “How are you?,” she asked.  “I’m great I replied.”  “No.  REALLY.  How are you feeeeeling?,” she...
July 9th, 2009 | Everything Changes | Read More

Are You Annoying Your Doctors?

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My healthcare motto as of late is quit bitching and start thinking.  Yes, the health care system sucks and we need to vent about it big time.  But, we also need to learn how the system and its players work so we can use them to our advantage.  We cannot do this if we think patients are never to...
June 29th, 2009 | Everything Changes | Read More

Best Support from Friends and Family

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When I’m feeling sick, scared, or overwhelmed by my health, I don’t want friends or family bullshitting me and telling me that everything is going to be fine. It only makes me feel worse.  In fact it makes me want to smack them. I got a facebook message today from the wife of a young adult cancer...
June 16th, 2009 | Everything Changes | Read More

Kairol’s Essay On Public Radio

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Listen this week to me on the radio talking about how cancer, and my lack of health insurance, made me into an excellent liar. You can hear it this week online too by visiting the home page for The State We Are In and clicking on “This Week’s Show” next to my picture. Mine is the...
June 14th, 2009 | Everything Changes | Read More

Telling Your Kid You Have Cancer

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I have yet to figure out how Wendy S. Harpham, MD, FACP manages her life as a doctor, cancer patient, author, and mom of three kids. She’s a super warm, kind person too. In the parenting section of my book Everything Changes, I recommend her award-winning book When a Parent has Cancer: A Guide to...
June 14th, 2009 | Everything Changes | Read More

Cancer Vacations

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Many survivors my book marked the end of treatment with a trip. Some expensive, most on a shoe-string. Some foreign, others just a refreshing get away to see family or friends. If your thinking of adventure travel, Defy Adventures, a new adventure travel organization for young adult cancer patients....
June 5th, 2009 | Everything Changes | Read More